A Statement from The Mayday Project’s Board of Directors
It is with great disappointment that The Mayday Project announces the
cancellation of it's science forum on Capitol Hill, May 19. Due to the most recent
attempts by other organizations to garner support for S 1503, we have decided
that now is not the best time to give a presentation that may be misconstrued as support
of a bill which we believe could damage the Lyme commmunity. Although the bill has
some good ideas, it also has some potentially harmful aspects that no one is willing to address
and correct before passing it out of committee. We feel S. 1503 is another
“You need to pass it to see what’s in it” bill. For this reason, The Mayday Project stands in
support of the *PALtad (Partners Against Lyme and Tick Associated Diseases) position paper
that was presented last year. (Please see that document for details.)
It’s more like throwing darts while blind-folded in hopes of hitting the bulls-eye.
The unknown disadvantages are critical issues for this community. Since this is
a presidential election year, we will also have a change in leadership in Health
and Human Services next January. “If” the bill is passed and “if” these current federal
agencies which do not believe in chronic Lyme disease wish to stack the panel
in support of it's position, someone such as Dr. Gary Wormser or Dr. Alen Steere
could be appointed to be the next HHS Secretary. Yes, this is a real possibility!
This bill may have potential...if we can correct the issues before its passage.
However, a coalition of Lyme advocates have brought up several concerns about
S.1503 to Senators many times, only to have these concerns dismissed.
If the bill passes, the damage that could occur will stand for at least 5-10 years
before any new changes could happen. Is that really what the Lyme community wants?
This may be a good bill (if changed), but it’s not the right bill at this time.
Let’s work together next year, on a new bill which we can all be confident will bring
meaningful and overdue help to a suffering community.
We urge everyone to please read S.1503 and the Paltad position paper.
The MayDay Project Board of Directors
*PALtad represents over 30 Lyme groups/organizations across America and Canada